Current Situation

Hello. I'm still the same as last time. Bad spasms, shortness of breath etc. but it's getting slowly worse in a way. My lungs/chest are aching a lot, when I yawn I can take a full breath but when I do get a full breath my lungs ache 99% of the time. It's horrible. I... Continue Reading →

Back Now

Hello. About an hour ago I got back from Keswick. I'm shattered, I loved every minute of the trip but its worn me out. We stayed in a Youth Hostel which was alright it's just I was constantly on edge that I would wake another room, but that's just me. I also didn't sleep very well so,... Continue Reading →

Off School

Good Morning. Hope your all doing ok. I'm off school now so, yay. I'm looking forward to Keswick but the worry of me taking bad is still hanging over me, but I'm determined to have a good holiday none the less. I'm sick of Youtube, sick. You know how I say I have a bad... Continue Reading →

Back To School (Kind of)

Hi, how are you? Sorry I haven't written a post in a while, I've been busy. I'm back at school now and doing half days. I'm still getting spasms and my breathing is no better but I can't stay off school forever. Speaking of school, I'm off next week. Me, my brother and my dad are going... Continue Reading →

Went Back To School

Hi, it's me again. Yesterday I did a half day at school. I had a spasm in my hand throughout the day but I could kind of ignore it. Afterwards, I had a full spasm which continued until I fell asleep. When I woke up this morning, the same spasm occurred. I haven't been to school... Continue Reading →


Dystonia causes me a great deal of pain. The worst pain you have ever felt. Agony. But I pull through. It hurts, it hurts like hell (And that is a severe understatement). But I pull through. Why? Well, because giving up would be letting Dystonia win. And I am NOT prepared to let Dystonia win. If... Continue Reading →


Currently, I am having a spasm. No one can see it and if someone looked at me, they wouldn't know that I'm having a spasm unless I said the words 'I'm having a spasm'. My disability is invisible. If you passed me while walking down the street, you would think that I just 'Hurt my... Continue Reading →


Good Morning, hope your okay. I'm still feeling the same and quiet tired. School has started sending work home which I hate which I'm not ready for. I feel a lot more tired then usual. I feel more comfortable when my eyes are closed but I can't sleep during the day and during the night I... Continue Reading →

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